The Land of Magic !!!

Hey fellow FND Warriors and those who read my blog, thank you for continuing the be patient with my post timings I am rubbish (I do apologise).

So whats been happening? Have I fallen off the face of the Earth?

Q1: A lot

Q2: Nope i’m still here just had a detour haha

A lot has been happening over the past month, my partner and I took a small break to Disneyland Paris (nothing major….its only Disney …..SAID NO ONE EVER). DISNEYLAND was FANTASTIC !!!

We went to Disneyland for 2nights 3 days and spent the whole time and I mean the whole time in the Park, amazing experience and hoping to go back again Christmas time. For those who love Marvel they are currently building a Marvel themed hotel ….. #awesome #marvel #cantwait # timetostartsaving !!! We got to meet the Mouse himself Mickey, this was an incredible experience along with Minnie, Donald and not to mention Mary Poppins (for those of you who know me or have been following my blog then you would have probably gathered by now that I am a HUGE Mary Poppins Fan)

YES we qued for Character meet and greets and got there autographs (cool kids we are)

For those of you who haven’t been to Disneyland then 100% you NEED to go….its not even a want to go its defo a NEED to go.

To be honest its not as expensive as we were expecting; a few people said to us it is really expensive, don’t buy anything there. Well let me just say this, it is what you would expect Disney to be and France to be fair. My partner and I both lived and worked in France for a couple of season and France can be expensive; so when we arrived in Disney we was expecting to pay 8 Euro for a couple of Cokes but when it comes to the shops then It is like the Disneystore.

 

So yeah that happened !!!

It was well needed for the two of us just to spend quality time together, just to get away from all the hussle and bussle of daily life and emerge ourselves into the land of magic, where dreams really do come true.

Each day was very tiring up at the crack of dawn to get to the park for when it opened and pretty much power through until the evening to grab some food and then back to the park for the evening antics. Worth the aches and pains, I must admit my body did pay for it at the end of each day aching head to toe, struggling to walk back to the hotel that seemed miles away, just about making into to crash on the bed, but other than that my FND symptoms where bearable just ignoring them because well I was in the land of magic anything can happen right?

Long story cut short …..

GET YOURSELF TO DISNEYLAND PARIS !!!

 

Peace Out !

 

Ciao, Adios, Bon Voyage.

x

 

 

 

 

When The Going Gets Tough

Living with a chronic illness that isn’t always visible can be tough; however I just want you all to know that as hard as it is stay in there, you can get through the rough patches and you will come out the other end smiling.

Photo by Pixabay on Pexels.com

I suffer with FND this stands for Functional Neurological Disorder….for those of you who have been following my blog (I know its been a bit come and go….I do apologize), I wrote a piece at the beginning about FND and how it affects my life ( wow sounds like a title for a book…stay tuned….you never know)

For those of you who are reading this right now and thinking what on earth is this barmy woman talking about….then read the next brief paragraph, I’ll try to bring you up to date.

So Functional Neurological Disorder is a problem with the functioning of the nervous system not a structural problem…its more that the brain does not send and receive messages properly…so let’s say in Laymens Terms “The hardware works … but the software doesn’t “. So people with FND can suffer from a varied …. menu let’s say, of symtoms. For example…

• Functional tremors
• temporary paralysis
• chronic fatigue
• chronic pain and complex regional pain.
• non epileptic seizures (NEAD)
• Sensory problems
• Sleep disorders
• Problems with speech and language

honestly the list goes on…but I won’t bore you….Hopefully your a bit up to speed.

So I’ll get to my story now.

This week has been a major crazy one. My body has been up and down…one minute I’m walking next minute I’m not….one minute I can eat and next minute….wait for it….your never going to guess….I CAN’T. This bit is not cool, especially if you have a massive Toberlorone bar starring at you in the face. (honestly my body tortures me haha )

Chronic illnesses do suck, and if your reading this and can relate….my arms really do reach out to you, give you and lift up and help you carry on.

Photo by Pixabay on Pexels.com

When things get tough, and you feel alone, you know people always say “i’m always here for you, just give me a call” but deep down you know they don’t really understand what is wrong….then your not alone. Just understand that your never alone because the most important person is with you constantly, that most important person understands everything you are going through, and that most important person can pick you up and encourage you to carry on…..that most important person is…YOURSELF!!!

You know yourself how much pain your in, you know yourself that at times it gets rough, so next time your feeling low…i know it sounds crazy but here’s what you do….in this order…

1. take a look in the mirror
2. tell yourself you are the most important person in your world.
3. tell yourself you can do this
4. tell yourself what other people think of you/judge you is not important because your the one who truly knows what’s happening.
5. finally still looking in the mirror tell yourself you can do this, you can get through today, tell yourself everything is as perfect as can be. Then belt out a loud WOOHOO.

See mental huh? but give it ago….boost your self-esteem then anything is possible ladies and gents.

peace out !

Ciao, Adios,Bon voyage

xx