Good morning you lovely bunch, hope your all doing ok and life is treating you all well.
Now, I don’t know if it’s just me, but lets just say around 3am in the morning I suddenly think of the most random things I could blog about and tell you guys, in my head at 3 in the morning I have typed it all out and erased it and started again about 10 times and then actually come up with an amazing post, to then just say to myself I’ll get the laptop out in the morning and write exactly that !!! ……. (the morning comes and well …. as you can gather I do not get said laptop out and write the amazing thing I wrote in my head the night before….#rookymistakerightthere)
I also think of other random things at stupid o’clock in the morning; things like:
- I wonder what I was doing this time 5 years ago (to which I reply to myself….exactly what your doing now you turnip !
- Or things like ……. I wonder who discovered the Giraffe and why they named it Giraffe
The brain is a fascinating complex organ…. wouldn’t you agree ?
Speaking of the brain …. how are all my fellow FND warriors doing ?
I don’t really have much update on the FND front to be honest, my symptoms are all still the same however the past 3 weeks I have noticed I do have ticks every other day, not always a major tick event though! I tend to only make sounds too rather than saying words, expect the word boom ….. yep boom … after making a tick tick sound….so it comes out as tick tick boom ! (got to laugh or ill sit there crying I suppose haha )
Does anybody else experience ticks with their FND? I’m just curios as when and why you think they started for you?
Oh…slight back track…..another thing I was thinking about the other night at stupid o’clock in the morning was: I ask you guys a lot of questions throughout my posts and also mention about you guys contacting me if you would like to etc and I suddenly thought well how on earth are you doing to do so……..so…..here is now an email address if you would like to get in contact etc. and answer the questions and other things I talk about throughout my blog if you wish too. journeywithmeFND@outlook.com
Ok….back to the previous convo…..FND has been going alright I guess for me, steady lets say. Although I did burn myself (accidentally of course) whilst pouring a cuppa the other day, (first time in ages this has happened may I add). For those that have been following this blog from the beginning you will have gathered how accident prone I am, (some of it is the FND but some of it is just pure clumsiness on my part haha) I immediately ran the cold tap on it for 20 minutes but if I’m totally honest I don’t know what stung the most…the actual burn itself or the freezing cold water gushing out of the tap onto my scorched skin ! I now how some more burn cream as I realised I didn’t have any on me (in the words of Homer Simpson … DOH).
So all in all …. FND has been perfectly fine this month (she says…whilst thinking about any other FND mishaps to tell her fellow readers).
Has FND been treating you well? do you have an interesting story you want to share with the world when it comes to FND or any other health condition?
(I try not to speak a lot about FND but it is why I started this blog I suppose)
Before I dash off I noticed on one of the groups I am on on Facebook regarding FND someone was wondering about some FND specialists centres in the UK. I thought I would share with you all this bit of useful info…..
Don’t quote me on it but I’m pretty sure you can ask your normally GP to be referred.
BRISTOL
ROSA BURDEN CENTRE, SOUTHMEAD HOSPITAL
- OverviewAt the Rosa Burden Centre we have psychiatrists, therapists and nurses with lots of experience working with patients with these symptoms.
We have an outpatient clinic in which we carry out assessments and provide guidance. We provide outpatient psychological treatment (CBT) for suitable patient.
LONDON
WOLFSON CENTRE FOR NEUROREHABILITATION AT QUEEN MARY HOSPITAL IN ROEHAMPTON
- OverviewThe inpatient neurorehabilitation programme is based at Queen Mary’s Hospital, Roehampton as part of St George’s Hospital NHS Trust. It provides assessment and treatment for FND across a variety of inpatient and outpatient settings. We routinely diagnose patients with FND in outpatient clinics, as well as on the acute medical/neurology wards at St George’s. Patients move through our pathway receiving rehabilitation for FND either as an outpatient or after being admitted for inpatient neurorehabilitation.
LONDON
THE NATIONAL HOSPITAL FOR NEUROSURGERY AND NEUROLOGY
- OverviewThe NHNN has a long-established treatment programme for patients with FND within the Neuropsychiatry Department.
Patients may be referred to our MDT Outpatient Clinic for assessment of suitability for treatment. The referring doctor needs to have made a positive diagnosis of FND and to have explained this to the patient. We do not provide a diagnostic service for this condition. Patients will be seen by a Neuropsychiatrist or CNS-Neuropsychiatry and one or more therapists (Cognitive Behavioural Therapy, Occupational Therapy or Physiotherapy).
LEEDS
NATIONAL INPATIENT CENTRE FOR PSYCHOLOGICAL MEDICINE (NICPM)
- OverviewThe National Inpatient Centre for Psychological Medicine delivers biopsychosocial holistic care for people with complex medically unexplained symptoms and physical / psychological comorbidities.
There is also quite a few OUTPATIENT centres throughout the UK. Here is the link to FND hope UK website who have all the info you need https://www.fndhope.org.uk/about-fnd-hope/fnd-hope-uk/fnd-treatment-uk/
On that note, I’m going to love you and leave you…..until next time…
Peace out !
Ciao, Adios, Bon Voyage
xx
HELLO & WELCOME 